Be Patient: Helpful Advice from Our In-Home Care Experts
ALS does not affect the senses (sight, smell, taste, hearing, and touch). Therefore, caregivers for someone living with this disease will need to be patient when waiting for a reply to a question or other interaction and not assume that the person did not see or hear something.
As this neuromuscular disease progresses, speech will be affected by amyotrophic lateral sclerosis (ALS) at some point. More commonly called Lou Gehrig’s disease after the famous baseball player who was diagnosed with it in 1939, ALS affects the muscles used for movement, speech, breathing, and eating.
“You are encouraged to adapt to ALS continually in order to meet the demands of work, home, and other physical needs. With perseverance, ingenuity, technical assistance, and support from others, you can continue to communicate at the highest level,” states the ALS Association in their guide, Living with ALS: Adjusting to Swallowing and Speaking Difficulties.
Our caregiver agency, Homewatch CareGivers®, is happy to recommend a speech pathologist who is trained in working with people living with ALS, and who can provide assistance and make suggestions to effectively help your loved one maintain speech and adapt to the changes.
The ALS Association offers these tips for speaking difficulties caused by ALS:
- Speak slowly and repeat words when necessary
- Establish a communication partner who can “translate” for you at times
- Use an alphabet board, an iPad, or another computer device to spell or write out words
A family caregiver or professional caregiver can help facilitate communication with doctors and others. There are also many communication devices to choose from when it becomes too difficult to talk.
Reach out to Homewatch CareGivers with any questions you may have about ALS and communication. Contact our caregiver agency today!