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ALS: Caregiver Tips

ALS will cause changes in a person’s ability to eat, communicate, and exercise. Learn more about how to adapt care as the disease progresses in the person living with ALS. Care for someone living with ALS can require a great deal of patience and understanding.

3 Tips for ALS

1. Be patient.
ALS (Lou Gehrig’s disease) does not affect the senses (sight, smell, taste, hearing, and touch). Caregivers for someone living with this disease will need to be patient when waiting for a reply to a question or other interaction and not assume that the person did not see or hear something.


2. Make eating easier.
Because of changes in the ability to swallow, a caregiver to someone living with ALS will need to assist with modifying foods, ie. pureeing foods. In addition, the person with the disease should be sitting upright during mealtimes.


3. Keep moving.
As muscle movement deteriorates progressively with ALS, a caregiver will need to assist with mobility and transferring the person living with the disease from a sitting or lying down position to standing or getting in and out of wheelchair.